Waiting at the airport to board our plane to Sacramento.
They attempted to return the torn skin to her scalp, but it
was too badly damaged by the dog/incident. (The skin was kept on ice during her
ER visit and flight). A few days later, they grafted some skin from the back of
her head, although this skin had no hair follicles, so she was bald in this
area. We were advised tissue expanders would be the best option to restore hair
to that area.
Original skin returned to scalp.
New grafted skin.
In June 2011, we flew back to Sacramento, where they implanted
three self expanding tissue expanders into her scalp. These types of expanders
have been used in Europe for years, but were just recently approved for use in
the US. The day after they implanted and her head was unbandaged we saw that the
expanders were tearing and bruising her skin. The day after the original surgery,
Solana went back into surgery to remove one of the expanders. The following day
she went into surgery again to remove the other two. It was immediately evident things were not
going to progress well using these expanders. Solana underwent three surgeries
in three days and the process was completely unsuccessful. We were advised to
wait a minimum of six months, to give her a rest from the hospital, and then we
could try using “regular” tissue expanders.
The self expanding expanders (tearing her skin).
Later that year Amara started Kindergarten so traveling to
California would not be as easy. We ultimately decided to have the next
procedure done locally at Children’s Medical Center in Dallas, TX. This brings
us to the current procedure.
You have one very brave girl! My daughter is 4.5 years old, and we just finished with two rounds of tissue expanders, all on her face and head, to remove a large black birthmark that covered her forehead, scalp and cheek, all on the left side. It's been a long 2 years, but we are nearing the end. Your daughter is not only brave, but beautiful!!! May God continue to bless the healing. A year later, she looks amazing. Just love the sparkle in her eyes!!
ReplyDeleteMy son is 5 and had cancer on his scalp when he was 2, after 5 surgeries in 7 weeks he had it all removed and it left a large 12 cm circle of his scalp missing. As his cancer is so rare (one in 10 million for children). We are about to begin the tissue expanding process and wanted to ask if you had any advice around how you managed your daughters school classmates, what you did. Any support, help or suggestions would be so apprecaited. Thank you for your bravery and posting this blog.
ReplyDeletePam